PLEASE PRINT ME OUT, SO YOU CAN READ AT YOUR OWN LEISURE WHEN YOU HAVE A MOMENT.

Hi everyone

I am 25 years old and have recently been diagnosed with Crohns Disease and IBS, and am looking to start up a support group who can help each other and campaign to the goverment for awareness.

I feel that as a 25 year old, I am not a victim of this, but could become one. I want to make sure that I can use what energy I have and ability i have that others who are more impaired by this terrible disease cannot use, to promote awareness, campaign to the government and start a MUCH needed support group in Surrey - but I can only do this properly if I join the National Association of Crohns and Colitis.

I have only lived my life with Crohns symptoms for 10 years - some children are born with this and never know a pain free life. Crohns sufferers often are admitted to hospital to be put on IVF just to get fluids and salts back in the body. I have only been hospitalised twice in the past year - but it really is not pleasant being away from friends and family who give you comfort.

The reason why I am looking for a sponser, or sponsers is that I have been signed off sick and am on my 4th week of this. I have another 2 to go initially, but my medication has stopped working and it looks as if I shall have to be off work for a good few months - if not forever. The disease is very unpredicatable and sometimes nothing works. My statutory sick pay is £80 a week - £320 a month. This is my only income. ONLY income. I am currently applying for housing benefits, but it looks as if it is going to take a while as I will have to wait to contact them for a day when I can leave the house. My rent itself is £400 a month, and my council tax is £80. My prescription charges are £40 a month. As you can see, paying to join the National Association of Crohns and Colitis is a price I cannot afford - no matter how little.

If i can join this amazing association, I can start my own support group. Not only will this help me to talk to people who go through the pain and embarrassment of potentially vomiting in public and having to use the toilet urgently, I would look to form a group to help to raise money into medications that work. I also want to be able to campaign for all sufferes to be able to carry a card with them that they can give out when they need help. Whether this is finding a toilet, or a card asking a member of the public to call 999 (often I collapse with my Crohns) I think being able to give out such a card to all sufferers to carry would help us old Crohnnies to feel less anxious about going out.

I also want to campaign so that IBD sufferers do not have to pay to use any toilet, or buy any purchase from any venue to use one. As a member of the public, this is a massive health and safety issue. If a person knows they are going to have to vomit or use the bathroom, surely you guys want them to do this in a toilet??? A card that we could carry would mean that we could do this. BELIEVE ME - i would go out whole load more often, and possibly do things that any other 25 year old can do, like go on a good old night out, if i knew i was in trouble, I could give my card to a bouncer, or member of bar staff who would help. Talking is impossible while vomiting and in excrutiating pain - cannot be done - and its important that people know what is needed, and that I have NOT taken drugs or am drunk.

Please print this out, leave it around, show it to whoever you can. I would also like to be able to start a business from home making home made soaps and candles with relaxing essential oils in them - if there is anyone who could help me start this up financially, or with donated goods, they would be an utter angel. If i can work from home, I can raise my own money to help me get whatever treatment is best, and focus completely on whatever money i need to campaign, pay for tea bags etc for the support group.

I cannot do any of this without any money at the moment. Please help

love

Sally

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